Consultation response on a proposal regarding research registries (SOU 2015:45)

The task of the inquiry committee was to:

  • increase the extent to which agencies responsible for registers may disclose data for research purposes with regard paid to the protection of the individual’s privacy,
  • facilitate joint processing of register data for research purposes and
  • make possible the privacy-assured collection of personal data for registers maintained for specific and explicitly stated research purposes and for longitudinal studies confined to the scope of such purposes.